Category Archives: illness

Stop the world

Sunday morning I rushed over to your house.

Let myself in hurry upstairs to your bedroom.

You lay there opened your eyes and smiled.

And I knew.

I came and lay beside you.

‘Come here let me hold you’

You struggled to turn onto your side to face me.

Strength you once had slowly ebbing away.

I held you gently stroking your hair.

‘ it’s okay I’ve got you.’

Breathing in the smell of your hair.

Closing my eyes capturing ‘this’

Knowing this was the last time we would ever lie together alone.

Any pain?

‘No I’m fine’ you whisper

I wish that were true.

Your window is open and the sound of the city drifts in to remind us that the world still turns.

I wish that it would stop.

Just give us a little more time.

To talk, laugh to just be us.

I’ve known for eighteen months

I’ve walked beside you on this journey.

Even though I know that it’s time

That your too tired to stay.

I wasn’t ready to let you go.

I know that you will always be around

That this isn’t the end.

This is the next part of your cosmic adventure

But as I held you as you left us

I felt the universe rip a hole in my heart

The last goodbye

It was a Monday morning, I’m standing outside the village post office there is a middle-aged woman in front of me, in front of her, an old man smoking a roll up cig. The doors open and the queue slowly move’s inside.

The old man leans on the window ledge as he waits his turn. He is wearing old blue jeans, and jacket, and a denim hat. Not your typical pensioner outfit.

The lines and scares on his face tell a million stories. Stories of a hard man a fighter in his time

Stories of horror, sadness, hard times, joy and laughter.

I try to concentrate on the posters on the wall. Television licence. First class stamps. Car tax. Premium bonds.

I focus on very brightly coloured poster.

St Hayden school Jumble Sale this Saturday 1.PM.

But still my eyes are drawn to him.

Half of me would like him to see me.

Half of me would like to run.

He’s holding what’s left of a roll up fag he was smoking outside. Staring ahead of him, brown eyes the same as mine milky now with age.

Wisps of silver grey hair peep from under his denim cap. Tattoos on his knuckle’s scar on his face.

He’s standing at the counter now, next to me I can smell that familiar smell of old Holborn.

I hand the woman my family allowance book, she’s smiling and saying something about the weather. I wish she would shut up as I’m straining to hear his voice.

Deep and rasping, so familiar, yet he’s become a stranger to me.

His own doing, he doesn’t know me. He never really did.not the real me.

My chest tightens, I feel my eyes prick with tears, but I won’t let them come.

Something inside of me still desperately wants him to know me.

What I’ve achieved and who I am.

He doesn’t know what I like if I take milk in my tea, what makes me happy or sad.

What issues I feel passionately about.

That despite everything I’m a good Mam.

He used to tell me I’d amount to nothing.

Nothing more than a whore.

Those words are etched into my soul.

That is how I always felt insignificant, ugly, worthless, nothing.

You’ve probably guessed by now the old man in front of me is my Dad.

The same old man who still walks in my dreams.

The man who struck terror into the heart of a small child.

Oh Dad I so desperately wanted to please you.

I wanted you to like me.

Sadly I still do.

I find myself fighting to suppress the pity I find myself feeling for him.

My heart beating in my head reminding myself of the holocaust he made my life.

There is a tiny piece of him I loved and adored the sober piece I always will.

That big man that carried me on his shoulders. Held my hand and walked me to school. Held my bike seat and smiled from ear to ear cheering his little girl as I peddled off on my own.

He taught me to play cards, draughts, let me help him when he’d wallpaper.

Gave me my love for books and the outdoors, taught me to write my name then later shared with me his talent for writing poetry.

He taught me to love nature and the countryside.

As I watched in awe as he’d whispered to horses.

Rescued a blackbird from a hawthorn bush.

Talked of make-believe, fairies and magic castles.

Oh how I loved that tiny piece of him, I still do,

I always will.

I desperately wanted then and now for that piece of him to become his whole.

For god the universe or some miracle to take away the bad piece. I want him to turn my way look at me and tell me he’s sorry.

I want him to hold me tell me everything’s going to be okay.

I want a family.

I want my children to have him as their granddad.

I want them to be safe.

He’s walking out of the door now.

I walk out behind him all of these thoughts buzzing in my head.

I get in my car sit in silence and watch him walk out of the post office and away and then the tears start to fall.

For the life I can’t have, and the wishes I can’t make come true.

I know I can’t change him from who he is.

To whom I would desperately like him to be.

But I’ll never stop wanting and wishing.

That day in the post office was the very last time I saw him.

Goodbye Dad.

He died a few years later. I didn’t get a sorry.

I didn’t go to his funeral.

Now I’m allowed to break our silence.sadness, hard times, joy and laughter.

I try to concentrate on the posters on the wall. Television licence. First class stamps. Car tax. Premium bonds.

I focus on very brightly coloured poster.

St Hayden school Jumble Sale this Saturday 1.PM.

But still my eyes are drawn to him.

Half of me would like him to see me.

Half of me would like to run.

He’s holding what’s left of a roll up fag he was smoking outside. Staring ahead of him, brown eyes the same as mine milky now with age.

Wisps of silver grey hair peep from under his denim cap.

He’s standing at the counter now, next to me I can smell that familiar smell of old Holborn.

I hand the woman my family allowance book, she’s smiling and saying something about the weather.

But I’m straining to hear his voice.

Deep and rasping, so familiar, yet he’s become a stranger to me.

His own doing, he doesn’t know me. He never really did.

My chest tightens, I feel my eyes prick with tears, but I won’t let them come.

Something inside of me desperately wants him to know me.

What Iv’e achieved and who I am.

He doesn’t know what I like, what makes me happy or sad.

What issues I feel passionately about.

That. despite everything I’m a good Mam.

He used to tell me I’d amount to nothing.

Nothing. More than a whore.

Those words are etched into my soul.

That is how I always felt insignificant, ugly, worthless, nothing.

You’ve probably guessed by now the old man in front of me is my Dad.

The same old man who still walks in my dreams.

The man who struck blind terror into the heart of a small child.

Oh Dad I so desperately wanted to please you.

I wanted you to like me.

Sadly I still do.

I find myself fighting to suppress the pity I find myself feeling for him.

My heart beating in my head reminding myself of the holocaust he made my life.

There was a tiny piece of him I loved and adored the sober piece. I always will.

That big man that carried me on his shoulders. Held my hand and walked me to school. Held my bike seat and smiled from ear to ear cheering his little girl as I peddled off on my own.

He taught me to play cards, draughts, let me help him when he’d wallpaper.

Gave me my love for books and the outdoors, taught me to write my name then later shared with me his talent for writing poetry.

He taught me to love nature and the countryside.

As I watched in awe as he’d whispered to horses.

Rescued a blackbird from a hawthorn bush.

Talked of make-believe, fairies and magic castles.

Oh how I loved that tiny piece of him, I still do,

I always will.

I desperately wanted then and now for that piece of him to become his whole.

For god the universe or some miracle to take away the bad piece. I want him to turn my way look at me and tell me he’s sorry.

I want him to hold me tell me everything’s going to be okay.

I want a family.

I want my children to have him as their granddad.

I want them to be safe.

He’s walking out of the door now.

I walk out behind him all of these thoughts buzzing in my head.

I get in my car sit in silence and watch him walk away, and then the tears start to fall.

For the life I can’t have, and the wishes I can’t make come true.

I know I can’t change him from who he is.

To whom I would desperately like him to be.

But I’ll never stop wanting and wishing.

That day in the post office was the very last time I saw him.

Goodbye Dad.

He died a few years later. I didn’t get a sorry..

I didn’t go to his funeral.

Now I’m allowed to break our silence.Monday morning, I’m standing outside the village post office. There’s a middle-aged woman in front of me, in front of her, an old man smoking a rolly. The doors open and the queue move’s inside.

The old man leans on the window ledge as he waits in the Que., he is wearing old blue jeans, and jacket, and a jeans hat.

The lines and scares on his face tell a million stories. Stories of a hard man,, a fighter in his time. Stories of horror,, sadness, hard times, joy and laughter.

I try to concentrate on the posters on the wall. Television licence. First class stamps. Car tax. Premium bonds.

I focus on very brightly coloured poster.

St Hayden school Jumble Sale this Saturday 1.PM.

But still my eyes are drawn to him.

Half of me would like him to see me.

Half of me would like to run.

He’s holding what’s left of a roll up fag he was smoking outside. Staring ahead of him, brown eyes the same as mine milky now with age.

Wisps of silver grey hair peep from under his denim cap.

He’s standing at the counter now, next to me I can smell that familiar smell of old Holborn.

I hand the woman my family allowance book, she’s smiling and saying something about the weather.

But I’m straining to hear his voice.

Deep and rasping, so familiar, yet he’s become a stranger to me.

His own doing, he doesn’t know me. He never really did.

My chest tightens, I feel my eyes prick with tears, but I won’t let them come.

Something inside of me desperately wants him to know me.

What Iv’e achieved and who I am.

He doesn’t know what I like, what makes me happy or sad.

What issues I feel passionately about.

That. despite everything I’m a good Mam.

He used to tell me I’d amount to nothing.

Nothing. More than a whore.

Those words are etched into my soul.

That is how I always felt insignificant, ugly, worthless, nothing.

You’ve probably guessed by now the old man in front of me is my Dad.

The same old man who still walks in my dreams.

The man who struck blind terror into the heart of a small child.

Oh Dad I so desperately wanted to please you.

I wanted you to like me.

Sadly I still do.

I find myself fighting to suppress the pity I find myself feeling for him.

My heart beating in my head reminding myself of the holocaust he made my life.

There was a tiny piece of him I loved and adored the sober piece. I always will.

That big man that carried me on his shoulders. Held my hand and walked me to school. Held my bike seat and smiled from ear to ear cheering his little girl as I peddled off on my own.

He taught me to play cards, draughts, let me help him when he’d wallpaper.

Gave me my love for books and the outdoors, taught me to write my name then later shared with me his talent for writing poetry.

He taught me to love nature and the countryside.

As I watched in awe as he’d whispered to horses.

Rescued a blackbird from a hawthorn bush.

Talked of make-believe, fairies and magic castles.

Oh how I loved that tiny piece of him, I still do,

I always will.

I desperately wanted then and now for that piece of him to become his whole.

For god the universe or some miracle to take away the bad piece. I want him to turn my way look at me and tell me he’s sorry.

I want him to hold me tell me everything’s going to be okay.

I want a family.

I want my children to have him as their granddad.

I want them to be safe.

He’s walking out of the door now.

I walk out behind him all of these thoughts buzzing in my head.

I get in my car sit in silence and watch him walk away, and then the tears start to fall.

For the life I can’t have, and the wishes I can’t make come true.

I know I can’t change him from who he is.

To whom I would desperately like him to be.

But I’ll never stop wanting and wishing.

That day in the post office was the very last time I saw him.

Goodbye Dad.

He died a few years later. I didn’t get a sorry..

I didn’t go to his funeral.

Now I’m allowed to break our silence.Monday morning, I’m standing outside the village post office. There’s a middle-aged woman in front of me, in front of her, an old man smoking a rolly. The doors open and the queue move’s inside.

The old man leans on the window ledge as he waits in the Que., he is wearing old blue jeans, and jacket, and a jeans hat.

The lines and scares on his face tell a million stories. Stories of a hard man,, a fighter in his time. Stories of horror,, sadness, hard times, joy and laughter.

I try to concentrate on the posters on the wall. Television licence. First class stamps. Car tax. Premium bonds.

I focus on very brightly coloured poster.

St Hayden school Jumble Sale this Saturday 1.PM.

But still my eyes are drawn to him.

Half of me would like him to see me.

Half of me would like to run.

He’s holding what’s left of a roll up fag he was smoking outside. Staring ahead of him, brown eyes the same as mine milky now with age.

Wisps of silver grey hair peep from under his denim cap.

He’s standing at the counter now, next to me I can smell that familiar smell of old Holborn.

I hand the woman my family allowance book, she’s smiling and saying something about the weather.

But I’m straining to hear his voice.

Deep and rasping, so familiar, yet he’s become a stranger to me.

His own doing, he doesn’t know me. He never really did.

My chest tightens, I feel my eyes prick with tears, but I won’t let them come.

Something inside of me desperately wants him to know me.

What Iv’e achieved and who I am.

He doesn’t know what I like, what makes me happy or sad.

What issues I feel passionately about.

That. despite everything I’m a good Mam.

He used to tell me I’d amount to nothing.

Nothing. More than a whore.

Those words are etched into my soul.

That is how I always felt insignificant, ugly, worthless, nothing.

You’ve probably guessed by now the old man in front of me is my Dad.

The same old man who still walks in my dreams.

The man who struck blind terror into the heart of a small child.

Oh Dad I so desperately wanted to please you.

I wanted you to like me.

Sadly I still do.

I find myself fighting to suppress the pity I find myself feeling for him.

My heart beating in my head reminding myself of the holocaust he made my life.

There was a tiny piece of him I loved and adored the sober piece. I always will.

That big man that carried me on his shoulders. Held my hand and walked me to school. Held my bike seat and smiled from ear to ear cheering his little girl as I peddled off on my own.

He taught me to play cards, draughts, let me help him when he’d wallpaper.

Gave me my love for books and the outdoors, taught me to write my name then later shared with me his talent for writing poetry.

He taught me to love nature and the countryside.

As I watched in awe as he’d whispered to horses.

Rescued a blackbird from a hawthorn bush.

Talked of make-believe, fairies and magic castles.

Oh how I loved that tiny piece of him, I still do,

I always will.

I desperately wanted then and now for that piece of him to become his whole.

For god the universe or some miracle to take away the bad piece. I want him to turn my way look at me and tell me he’s sorry.

I want him to hold me tell me everything’s going to be okay.

I want a family.

I want my children to have him as their granddad.

I want them to be safe.

He’s walking out of the door now.

I walk out behind him all of these thoughts buzzing in my head.

I get in my car sit in silence and watch him walk away, and then the tears start to fall.

For the life I can’t have, and the wishes I can’t make come true.

I know I can’t change him from who he is.

To whom I would desperately like him to be.

But I’ll never stop wanting and wishing.

That day in the post office was the very last time I saw him.

Goodbye Dad.

He died a few years after this diary entry was written.

Unexpected mam & Dad

It’s six am I’ve done three loads of washing, emptied the dishwasher fed the cats and the geese put washing on the line lost my cup of tea twice

The September sun is shinning it’s a beautiful day.

I’m picking up my mother and father in law at nine taking them to hospital father in law is being admitted nothing serious.
Normal?
No.
Wonderful yes.
You see I joke with my hubby I tell him he got me to come back to Wales under false pretenses.
He promised me a family a Mam and Dad .
That was fourteen years ago.
His mother is four foot f@@k all and scared the shit out of me.
No one was good enough for her boys. Typically Welsh mammy.

They should write mammy on the police cars in Wales there would be no trouble!
So back to my story some English woman was never going to cut it for Nancy’s boy.

I tried everything. But she was vile she was cutting critical so I left her to it.
Always encouraged my hubby to call.
Then nine months ago his father became I’ll and suddenly she changed!
She refares to me as her daughter. I was slightly scared wondering how long it would last.
But here we are.
The universe listens

So Nancy is alot older so am I .
But we are family
I’m taking Mam and Dad to hospital.
Saying something so simple makes me so happy.
Now where are my car keys 😊

Four little words

I can’t remember that last time I cried for myself, I’ve cried for other people but never for me, apart from when my granddaughter Tamika was born. Happiness of course. But before that I’m sure it was back in the dark ages before I came to Wales.
You see I’m always positive its just the way I am. Facebook status life in general I really do believe that there is always something positive in every situation. You just have to look.
I’ve been off work now since March after a sudden and completely unexpected collapse midnight on my birthday. I’d been walking my dog and cat, who by the way thinks he’s a dog down the canal for their walk.
I can’t really discribe what happened I just knew there was something very wrong.
Rang my hubby to come and get saffie as she couldn’t walk too fast.
Then hurried eight doors up to out cottage on the canal bank.
I made it too the bathroom where I got the worsed pain ever like being suddenly hit in centre of my he’d with a pick axe.
I thought this is it I’m going to die.
Sounds dramatic but I’m really not.
I really was that scared.
I lost my speech and couldn’t feel my left side.
Jeff came in picked me up, carried me into the car and within thirty mins I was in emergency room at Morriston hospital.
Pretty scary stuff as I never went to my G.P never took tablets, even had my children at home
So after being admitted I had lumber puncture, c.a.t scans, MRI, neurologists blood tests and transfared to three different wards and subjected to worsed hospital food a vegan could imagine
I was eventually discharged with a letter for my G.P a months sick note and a promise of a neurologist appointment within the month.
I was so relieved to leave still couldn’t walk so dragged my still numb left leg down the corridor ignoring Jeff’s plea’s to get in a wheel chair. (I may have swore at him)
I was and still am determined to sort myself out.
I admit thinking about it this was the universe kicking me up the arse to slow down
I had with hind sight missed a few warning signs vertigo, extremely painful joints, brain fog, pins and needles in my fingers and a weird sensation sort of crawling or dripping water under my skin on my back.
But as a lot of us do I blamed it on work..
Wrestling with wheelchair, or menopause, because let’s face it I’m 53 most things are down to the bloody menopause! Oh and the bed! I’ve had three new mattresses.
But now six months later still off work I’m not so sure.
I’m still waiting for my appointment.
I’ve agreed to take gabapentin and they do help slightly but there are mornings when I really struggle to get up and get downstairs.
The pain is horrendous.
My fingers are stiff, shoulders, hips and most other joints are beyond painful.the numbness is something else.
I use cannabis oil at night as otherwise I find lying on either side on my shoulders unbarable.
I accept it is something neurological I’m still having energy healing, relfexology and I’m thinking of taking up yoga anything to keep my muscles moving.
I will get better.
My worry is my job, I’m down to half pay, and if I’m honest I know I can’t go back and do the job I did. The occupational health doctor confirmed this last week. It’s one thing knowing it but having someone else tell you is different.
I have now gone into panic mode.
Shall I open a vegan cafe? I could do dog walking, pop up restaurant?
I have never NOT worked. I’ve always supported my family.
This is my weak link. I am still positive about things. I really am.
But I’m scared. What is it your trying to tell me universe I really am listening!
This morning lying in bed beside my hubby jeff sun streaming through the window his big arms around my I lay there head on his chest listening to his heart.
He talked about building a healing & therapies room we had planned for me to work from just behind the cottage.
‘I don’t want you doing it all yourself I said. Digging foundations when the weather goes cold.’ .
He tightens his arms around me and tells me to stop worrying. ‘This isn’t like you.’ He’s right it isn’t
‘we lead a very simple life I don’t want posh holidays never had credit cards I wear charity shop clothes happily. But keeping the car on the road paying bills and food in the cupbords are important. So yes the first time me not being independent paying my way is scary.

Shhhh he says.. ‘I’ll look after you.’
And that was it. Catalyst.
Four words that broke the dam. I cried I don’t think anyone has ever said that to me before.
‘Ill look after you’
I’ve looked after myself from being a kid anyway and everyway. .

So I know I’ll get better.
Maybe I won’t be able to stay in my current job but I’ll find a way to do something else I love.
Maybe that will be working from home in my new Healing room who knows what the universe has in store but I’m listening.
But I do know those four little words were said at just the right time, right place by just the right person. I love him my beautiful shy Welshman.
I’ll look after him too

A basket of stories.

I’m sitting on my bed, surrounded with paper, pieces of a new book.

Contemplating a re write more detail. Shall I start over again? Colours, smells descriptions painting the picture to make things visible for the reader.

The autumn sun is shining the sky is blue and the trees on the bank seem to dance around the silver bark beckoning me to go outside

I’m distracted by silly things the glass is blown we need a new tilt and turn window.

It opens onto the grey flat roof of the kitchen extension. Next doors fat black tail less cat Charlie sits looking thoughtful on the edge of the roof.

I have locked the door. Turned off my phone.

Today is mine I needed to just be. To be gentle with myself its been a hard week.

To be here in our cottage by this window finishing the book that was supposed to be finished in June.

I love this place this house I muse about my journey what brought me here.

To this canal this cottage.

The small circle of friends I hold dear.

The girl that I was, has stopped running and is now settled happy I am content with my lot.

Itchy feet the gypsy wonderer has pushed down roots deep into this magical place.

I’ve never been materialistic food in the cupboards diesel in my little car and mine and my family’s health that is enough. Anything else is a bonus.

A good friend of mine and I were talking on what’s app and referred to a job we both did previously which involved caring for vulnerable adults. She used the term carrying their stories.Boomthat really struck a chord.

Story carrier….

It was true. Very.

I have always been drawn to work that involved caring, nursing supporting vulnerable people it’s what I do best.

Disadvantaged children, Learning disabilities, Homeless, Addicts Mental health.

Now I’m a Soulmidwife Holistic Therapist .

The common thread in all of this is the stories.

I believe that that is the key to genuinely helping someone who is in a vulnerable position is listening.

Getting to know their story. Not just their diagnosis or their addiction or situation. How did they arrive at this point?

Each person I have worked with has their own complex story listening is the best gift I have given.

I have heard some horrendous stories, some sad some disturbing. But they are all pieces of a puzzle that makes a whole.

Now as a soul midwife I listen to wishes regrets and plans of patients who are end of life.

I have heard of baby boy given up for adoption in the war and a life then spent teaching and caring for other people’s children and a choice to never marry or have another child after a strict father forbid her to ever speak of her baby again. Sadly, she never got to find him. But the day after she told his story I sat held her hand as she passed peacefully knowing she had spoken his name and someone had listened.

I have contacted estranged siblings and listened to stories of lives that have been so similar apart regrets that family feuds hadn’t been resolved earlier.

I have listened to stories of abuse, rape self-loathing and harm. Reassured not judged held shaking hands

A hug a hand to hold sometimes reassurance that ‘you can get through this ‘the simplest things are the greatest gift.

So next time you walk by that homeless person or sit next to that old lady/man on a bench remember that every one of us has a story. Many stories that entwine into one life we collect along this path our journey.

Listening hearing and genuine acceptance are greatest gifts you can give.

Life is beautiful but sometimes unbareably hard.

I watch her smile at our grand daughter.
Struggling to hold her beside her as she lies in bed.
Her daughter Sarah and my son Michaels baby.
She and I have been best friends since they were children.
My random friend
Questions like could we keep a penguin in the bath?
The kind of friends that know each other well.
Our likes and dislikes
We laugh at the same things
Don’t get me wrong we have had our disagreements.
Passionate arguments.
But when push came to shove we both knew we could always depend on the other.
Forever friends.
We would joke about riding on old people scooters
I always hoped that Sarah and Mike would get together.
I loved Donna’s kids like my own.
And last year my meddling worked.
Not how I would have planned it but here we are.
And it is what it is.
You see we hadn’t seen each other for awhile we had texted but not seen each other for a year.
I work as a soulmidwife.
Companion to terminally ill.
On my way out of the hospital ward I was visiting I saw her there Donna.
Admitted with pain she had suffered with for awhile.
She had text and bllamed it on work, pushing wheel chairs lifting patients
But after two weeks she was diagnosed.
Cancer.
We fell back into step. Like we had never been apart.
We met the week after in the park engineered to have mike and Sarah with us.
Eighteen months later they are together.
We have Emilia our beautiful granddaughter.
She is the positive light that has kept Donna fighting.
Two rounds of chemotherapy she has been amazing.
I’m in awe of how brave she is.
Two months ago we flew to Corfu.
I stood on the deck of a boat watched as she swam in the bluest of seas warm sun.
White sands her long black hair shining
She was so happy
We visited old Corfu town, sat in small seafood restaurants by the sea.
Drank cocktails. Laughed danced and sang.
We didn’t speak of cancer.
What a difference two months can make.
This is my job I deal with it all the time.
There isn’t anything I can’t deal with
But
I don’t want to deal with this
For a month she has been complaining of pain in her liver. Twice admitted
Jaundice, codine, oramorph.
More pain
I stayed over with her last night
Eyes yellow tired and scared.
Reassured her that no matter what I’m there
I promise I’m by her side.
I promise her that her sister and I will look after the kids.
I will love Emilia enough for both of us.
I will help her make memory boxes
Write birthday cards, graduation wedding, and letters.
Of course I will. I love her.
I hold her hand in mine.
She falls asleep against me.
As she sleeps I feel her breathing rise and fall
Her hair is damp from my tears.
I pull the covers around her kiss her gently
Visualise myself watching her swim and smile in the blue sea
On our next holiday in the sun